1907. Barriers at the Last Hurdle: Implementing Advance Care Planning for People Living with HIV
Session: Poster Abstract Session: Clinical Practice Issues: HIV, Sepsis, QI, Diagnosis
Saturday, October 6, 2018
Room: S Poster Hall
Posters
  • Abstract_1907.pdf (687.3 kB)
  • Background: Advance care planning (ACP) is an increasingly relevant clinical practice as the HIV epidemic ages. In addition to a “graying” cohort of stable people living with HIV (PLHIV), late presentations predominate among newly-diagnosed older people in Singapore. Despite the availability of antiretroviral therapy (ART), prognosis remains guarded in these late presenters and PLHIV with poor adherence for whom ACP is more urgently needed. We sought to evaluate ACP implementation using a cascade-of-care model and determine barriers to its completion among PLHIV receiving care in an HIV specialty clinic.

    Methods: Eligible PLHIV were identified during multidisciplinary meetings of the National University Hospital’s HIV care team from January 2016 to December 2017. Eligibility was based on any of the following: age ≥55; current CD4 <200; ART non-adherence; or comorbidities potentially contributing to reduced life expectancy. ACP was offered to eligible PLHIV by their primary HIV doctor. If accepted, trained ACP facilitators continued the process of communication between PLHIV, doctors and loved ones. The process was completed with documentation of an agreed plan for future medical decisions, incorporating patient’s personal beliefs and goals, and with a nominated healthcare spokesperson.

    Results: Among 432 PLHIV screened, 127 (29.4%) were eligible for ACP. Of these, 70 (55.1%) were offered, 47 (37.0%) accepted and 12 (9.4%) completed ACP. Majority (38, 80.9%) who accepted ACP were ≥55 y.o. Most were male (43, 91.4%) and of Chinese ethnicity (72%). We found no significant differences between those who were offered, accepted and completed ACP.

    Barriers were examined via root cause analysis. Social stigma surrounding death (cultural beliefs) and HIV (isolation, fear of disclosure, lack of a potential spokesperson) were the major patient-centered barriers to ACP. Time constraint was the main healthcare provider-centered factor.

    Conclusion: Fewer than 10% of eligible PLHIV completed ACP. Interventions to address barriers along the cascade are urgently needed to ensure that the increased life expectancy of PLHIV translates into increased opportunities for ACP. All healthcare providers should dedicate time, address stigma and correct misconceptions by incorporating ACP discussions into the routine care of PLHIV.

     

    Brenda Mae Salada, MD1, Siew Fai Lee, Degree (Honours) in Psychology2, Clarisse Chen, Bachelor of Psychology3, James S Molton, MBBS4, Sophia Archuleta, MD1 and Jessica Michaels, Bachelor of Social Work, Masters of Policy Studies1, (1)Division of Infectious Diseases, University Medicine Cluster, National University Hospital, Singapore, Singapore, (2)National University Cancer Institute, National University Health System, Singapore, Singapore, (3)Alexandra Campus Programme, National University Health System, Singapore, Singapore, (4)Department of Medicine, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore

    Disclosures:

    B. M. Salada, None

    S. F. Lee, None

    C. Chen, None

    J. S. Molton, None

    S. Archuleta, None

    J. Michaels, None

    Findings in the abstracts are embargoed until 12:01 a.m. PDT, Wednesday Oct. 3rd with the exception of research findings presented at the IDWeek press conferences.